# CARE-SM CSV Glossary Documentation CARE-SM implements a CSV template structure to populate patient registry information. This template consists of a defined set of columns used across different data model modules. Depending on the specific module, a subset of these columns may be required, optional, or not applicable. ## CSV template columns The following table is the complete list of available columns: | Name | Datatype | Description | |--------------------|----------|-------------| | `model` | Literal (string) | Tag name used to identify the specific model to generate. | | `pid` | Literal (integer) | Patient unique identifier. | | `event_id` | Literal (integer) | Event-specific identifier used to contextualize several data elements under the same medical visit or encounter. | | `value` | Literal (string, number, or date) | Lexical value of this data element. | | `value_datatype` | Literal (string) | Additional metadata of the `value` column, using the [XML Schema Definition Language (XSD)](https://www.w3.org/TR/xmlschema11-1/). Expected datatype: `xsd:date`, `xsd:string`, `xsd:float` or `xsd:integer`.| | `valueIRI` | IRI | Full IRI-based value of the data element. | | `activity` | IRI | Full conceptual IRI describing a specific process associated with this data element, such as a clinical method or route of administration. | | `unit` | IRI | Full conceptual IRI describing the data element’s unit of measurement. | | `input` | IRI | Full conceptual IRI defining any input associated with the clinical procedure, such as a medication used or a related tissue sample. | | `target` | IRI | Full conceptual IRI defining any target associated with the clinical procedure, such as an anatomical structure or a molecule. | | `specification` | IRI | Full conceptual IRI specifying any protocol or document that contextualizes the reported data element. | | `duration_value` | Literal (ISO 8601 duration | Duration value, for instance, P10Y . it will be datatyped as `xsd:duration`. | | `duration_startdate` | Literal (ISO 8601 date) | Start date of the duration time interval. | | `duration_enddate` | Literal (ISO 8601 date) | End date of the duration interval.| | `frequency_type` | IRI | Full conceptual IRI defining the frequency type of the associated clinical procedure. | | `frequency_value` | Literal (string) | Numerical frequency value; combined with `frequency_type`, it defines the full frequency (e.g., “2 times per month”). | | `agent` | IRI | Full conceptual IRI defining an additional agent participating in the data element definition. | | `startdate` | Literal (ISO 8601 date) | Start date of the data registration or time instant when the observation was taken. If identical to `value`, it is not required. | | `enddate` | Literal (ISO 8601 date) | End date of the data registration, if it 's different from `startdate`. No need to add `enddate` if its a time point, only is required. | | `age` | Literal (integer) | Age of the patient at the time of observation. | | `comments` | Literal (string) | Human-readable comments or descriptions related to this data element. | | `organisation` | IRI | IRI used to define the organisation identifier. | ## CSV template creation This guide explains how to structure, populate, and utilize CSV files for patient data in CARE-SM. 1. **Create the CSV File** This document would only allow a set of concrete columns names: - `model`, `pid`, `event_id`, `value`, `age`, `value_datatype`, `valueIRI`, `activity`, `unit`, `input`, `target`, `specification`, `frequency_type`, `frequency_value`, `agent`, `startdate`, `enddate`, `comments`,`organisation`. *Example:* ```text model,pid,event_id,value,age,value_datatype,valueIRI,activity,unit,input,target,specification,frequency_type,frequency_value,agent,startdate,enddate,comments,organisation ,,,,,,,,,,,,,,,,,, ``` 2. **Populate Data** Each data entry needs specific fields (not all fields are mandatory). See the glossary below for details. *Example:* ```text model,pid,event_id,value,age,value_datatype,valueIRI,activity,unit,input,target,specification,frequency_type,frequency_value,agent,startdate,enddate,comments,organisation Diagnosis,30056,,,,,http://www.orpha.net/ORDO/Orphanet_93552,,,,,,,,,,,2006-01-19,,, ``` For more examples, refer to the [`exemplar_data`](https://github.com/CARE-SM/CARE-SM-Implementation/tree/main/CSV/data) folder. ## Data Element Glossary **Legend:** - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) This column is **MANDATORY** for this case. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) This column is **OPTIONAL**. for this case - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) This column is **NOT APPLICABLE** for this case.
(birthdate_glossary)= ### Birthdate **This data element can be queried (in an aggregated and anonymized manner) through the Beacon API developed for CARE-SM. For more information, click [here](https://github.com/CARE-SM/beaconAPI4CARESM)** - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Birthdate - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: ISO 8601-formatted birthdate. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration., could be the same of the `value` - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **age**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(birthyear_glossary)= ### Birthyear **This data element can be queried (in an aggregated and anonymized manner) through the Beacon API developed for CARE-SM. For more information, click [here](https://github.com/CARE-SM/beaconAPI4CARESM)** - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Birthdate - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: The year (YYYY) in which a person was born. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **startdate**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **enddate**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **age**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(country_glossary)= ### Birthplace **This data element can be queried (in an aggregated and anonymized manner) through the Beacon API developed for CARE-SM. For more information, click [here](https://github.com/CARE-SM/beaconAPI4CARESM)** - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Birthplace - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **value**: Human-readable label of the country. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **valueIRI**: Full IRI used as annotation code for the country at birth. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **age**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(deathdate_glossary)= ### Deathdate - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Deathdate - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: ISO 8601-formatted date of death (not date time) - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **valueIRI**: Full IRI used as annotation code for the cause of the patient's death. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration., could be the same of the `value` - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(sex_glossary)= ### Sex **This data element can be queried (in an aggregated and anonymized manner) through the Beacon API developed for CARE-SM. For more information, click [here](https://github.com/CARE-SM/beaconAPI4CARESM)** - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Sex - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **value**: Human-readable label of the concept IRI used for `valueIRI`. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **valueIRI**: Full concept IRI for the patient sex annotation.** - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **age**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**: ** If you are representing CARE-SM with the **OBO Foundry**, use the one of the following **NCIT terms**: - http://purl.obolibrary.org/obo/NCIT_C16576 (Female) - http://purl.obolibrary.org/obo/NCIT_C20197 (Male) - http://purl.obolibrary.org/obo/NCIT_C124294 (Undetermined) - http://purl.obolibrary.org/obo/NCIT_C17998 (Unknown)
(first-visit_glossary)= ### First Confirmed Visit - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: First_visit - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **value**: ISO 8601-formatted date of first confirmed visit. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration., could be the same of the `value` - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(status_glossary)= ### Participation status - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Status - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **value**: Human-readable label of the concept IRI used for `valueIRI`.** - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **valueIRI**: Full concept IRI for the patient participation status annotation. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**: ** If you are representing CARE-SM with the **OBO Foundry**, use the one of the following **NCIT terms**: - http://purl.obolibrary.org/obo/NCIT_C37987 (Alive) - http://purl.obolibrary.org/obo/NCIT_C90387 (Found Dead) - http://purl.obolibrary.org/obo/NCIT_C70740 (Subject Lost to Follow Up) - http://purl.obolibrary.org/obo/NCIT_C124784 (Refusal To Participate)
(symptoms_onset_glossary)= ### Symptoms onset **This data element can be queried (in an aggregated and anonymized manner) through the Beacon API developed for CARE-SM. For more information, click [here](https://github.com/CARE-SM/beaconAPI4CARESM)** - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Symptoms_onset - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: One of the following: * Age of the symptoms onset. * ISO 8601-formatted date of the symptoms occurrence. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value_datatype**: XSD datatype that defines `value` column. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **target**: Full concept IRI for the particular symptom annotation. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of registration - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(phenotype_glossary)= ### Phenotype **This data element can be queried (in an aggregated and anonymized manner) through the Beacon API developed for CARE-SM. For more information, click [here](https://github.com/CARE-SM/beaconAPI4CARESM)** - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Phenotype - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **value**: Human-readable label of the concept IRI used for `valueIRI`. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **valueIRI**: Full concept IRI for the phenotype, symptom or sign annotation. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **target**: Full concept IRI for the anatomic region where the observation was diagnosed, including the cardinality if possible. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **duration_value**: ISO 8601 duration value of the phenotype duration interval, for instance, P10Y. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **duration_startdate**: ISO 8601 start date of the phenotype duration interval. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **duration_enddate**: ISO 8601 start date of the phenotype duration interval. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(diagnosis_glossary)= ### Diagnosis **This data element can be queried (in an aggregated and anonymized manner) through the Beacon API developed for CARE-SM. For more information, click [here](https://github.com/CARE-SM/beaconAPI4CARESM)** - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Diagnosis - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **value**: Human-readable label of the concept IRI used for `valueIRI`. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **valueIRI**: Full concept IRI for the disease or disorder diagnosed. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **target**: Full concept IRI for the anatomic region where the diagnosis was performed. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **specification**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(examination_glossary)= ### Examination - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Examination - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: Resulting value from this examination. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **value_datatype**: XSD datatype that defines `value` column. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **valueIRI**: Full concept IRI for the patient attribute/finding examined annotation.** - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **activity**: Full concept IRI for the specific method activity. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **unit**: Full concept IRI for the unit of measurement. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **target**: Full concept IRI for the anatomic structure examined. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: URL reference to any protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**: ** If you are representing CARE-SM with the **OBO Foundry**, this is some example using **NCIT terms**: - http://purl.obolibrary.org/obo/NCIT_C25208 (Weight) - http://purl.obolibrary.org/obo/NCIT_C25347 (Height) - http://purl.obolibrary.org/obo/NCIT_C99524 (Left Ventricular Ejection Fraction) - http://purl.obolibrary.org/obo/NCIT_C16358 (Body Mass Index)
(laboratory_glossary)= ### Laboratory - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Laboratory - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: value of the laboratory measurement. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **value_datatype**: XSD datatype that defines `value` column. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **activity**: Full concept IRI for the specific method annotation. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **unit**: Full concept IRI for the unit of measurement. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **input**: Full concept IRI for the substance sample analysed. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **target**: Full concept IRI for the compound measured in the sample. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: URL reference to a protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(genotype_glossary)= ### Genetic **This data element can be queried (in an aggregated and anonymized manner) through the Beacon API developed for CARE-SM. For more information, click [here](https://github.com/CARE-SM/beaconAPI4CARESM)** - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Genetic - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: Lexical annotation code for the genetic variant. E.g. NM-004006.2:c.4375C>T p.(Arg1459*) - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **valueIRI**: Full concept IRI for the genetic variant annotation. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **activity**: Full concept IRI for the specific method. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **input**: Full concept IRI for the type of substance sample analysed. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **agent**: Full concept IRI for the associated zygosity annotation. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(medication_glossary)= ### Medication - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Medication - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: Prescribed or Administrated dose value. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value_datatype**: XSD datatype that defines `value` column type. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **valueIRI**: Full concept IRI for the definition of the type of medication. (Drug Prescription or Administration).** - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **activity**: Full concept IRI for the route of administration. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **unit**: Full concept IRI for the unit of measurement. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: URL reference to a protocol. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **frequency_type**: Full concept IRI for the administered/prescribed frequency annotation. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **frequency_value**: frequency value prescribe to the patient - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **agent**: Full concept IRI for the drugs annotation. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**: ** If you are representing CARE-SM with the **OBO Foundry**, use the one of the following **NCIT terms**: - http://purl.obolibrary.org/obo/NCIT_C167190 (Dose Administered) - http://purl.obolibrary.org/obo/NCIT_C198143 (Prescribed Dose)
(hospitalization_glossary)= ### Hospitalization - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Hospitalization - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **activity**: Full concept IRI for the specific activity performed during the hospitalization. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: URL reference to a protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(surgery_glossary)= ### Surgery - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Surgery - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **activity**: Full concept IRI for the specific activity performed during the surgery. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **target**: Full concept IRI for the anatomic structure that participates in the surgical intervention. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: URL reference to a protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(questionnaire_glossary)= ### Questionnaire - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Questionnaire - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: Score/value of the patient reported response. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value_datatype**: XSD datatype that defines `value` column. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **unit**: Full concept IRI for the unit of measurement. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **input**: Full concept IRI for the clinical question or statement to report. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **specification**: Full concept IRI for the assessment tool or Patient Reported Outcome Measures specification. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(disability_glossary)= ### Disability - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Disability - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: Score/value of the patient reported response. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value_datatype**: XSD datatype that defines `value` column. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **unit**: Full concept IRI for the unit of measurement. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: Full concept IRI for the clinical question performed. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **specification**: Full concept IRI for the assessment tool or questionnaire specification. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **duration_value**: ISO 8601 duration value of the disability duration interval, for instance, P10Y. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **duration_startdate**: ISO 8601 start date of the disability duration interval. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **duration_enddate**: ISO 8601 start date of the disability duration interval. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**:
(biobank_glossary)= ### Biobank - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Biobank - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **value**: Sample accesion number. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **input**: Full concept IRI for the type of tissue/sample collected during the sampling process. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **organisation**: Associated biobank identifier.
(consent_glossary)= ### Consent - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Consent - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **value**: some label describing consent outcome - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **valueIRI**: Full concept IRI that describes the consent statement.** - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **activity**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **target**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **organisation**: ** If you are representing CARE-SM with the **OBO Foundry**, use the one of the following **DUO and OBIB terms**: - http://purl.obolibrary.org/obo/DUO_0000001 (Data Use Permission) - http://purl.obolibrary.org/obo/OBIB_0000488 (willingness to be contacted)
(clinical_trial_glossary)= ### Clinical trial - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Clinical_trial - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.co/15x15/1589F0/1589F0..png) **value**: Study report name/identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **target**: Full concept IRI for the genetic or disease condition. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **organisation**: Medical/research center identifier associated with the clinical trial.
(cohort_glossary)= ### Cohort - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **model**: Cohort - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **pid**: Patient Unique Identifier. - ![](https://placehold.co/15x15/1589F0/1589F0..png) **value**: Study report name/identifier. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **value_datatype**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **valueIRI**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **unit**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **input**: - ![](https://placehold.jp/12/2854d7/ffffff/20x20.png?text=M) **target**: Full concept IRI for the genetic or disease condition. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **specification**: IRI reference to any associated protocol. - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_type**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **frequency_value**: - ![](https://placehold.jp/12/a29e96/000000/20x20.png?text=N) **agent**: - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **startdate**: ISO 8601-formatted start date of the data registration. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **enddate**: ISO 8601-formatted end date of the data registration in case it is different from `startdate`. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **age**: The patient’s age at the time the observation was taken. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **comments**: Additional human-readable comments. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **event_id**: Visit occurrence identifier. - ![](https://placehold.jp/12/d7a028/000000/20x20.png?text=O) **organisation**: Medical/research center identifier associated with the clinical trial.