CARE Semantic Model Documentation

Getting Started

• Introduction
  • Genesis of CARE-SM
• Foundational design of CARE-SM
  • Core Structure
  • Longitudinal records

List of Data Elements

• Demographics
  • Birthdate
  • Birthyear
  • Birthplace
  • Deathdate
  • Sex
• Participation and timeline
  • First confirmed visit
  • Participation status
  • Symptoms onset
• Conditions and findings
  • Phenotype
  • Diagnosis
• Clinical and molecular measurements
  • Examination
  • Laboratory
  • Genetic
• Patient-reported outcomes
  • Questionnaire
  • Disability
• Treatments and interventions
  • Medication
  • Hospitalization
  • Surgical intervention
• Research
  • Biobank
  • Consent
  • Clinical trial
  • Cohort
• List of ontogies used

Implementation Guide

• Implementation workflows
  • FAIR-in-a-box software
  • Standalone implementation
• Example material
• CARE-SM CSV Glossary Documentation
  • CSV template columns
  • CSV template creation
  • Data Element Glossary
• CARE-SM Toolkit
  • Why to use it?
  • Requirements
  • Docker
  • Local implementation

Citation and Acknowledgements

• Cite Us
• Acknowledgement